United Mitochondrial Disease Foundation

The United Mitochondrial Disease Foundation (UMDF) operates as a leading advocacy organization dedicated to advancing research, fostering education, and offering comprehensive support for individuals and families impacted by mitochondrial disorders. It actively promotes scientific inquiry to improve diagnosis, treatment, and ultimately, a cure for these complex conditions. The foundation also develops educational programs for the medical community and the public, disseminating critical knowledge about mitochondrial disease.

Charles Mohan, Jr. established the United Mitochondrial Disease Foundation in 1996, driven by the profound lack of resources and understanding surrounding mitochondrial disease at the time. His insight stemmed from the critical need for a centralized entity to champion research efforts and provide a supportive community for those grappling with this often-misunderstood illness, laying the groundwork for a dedicated network of experts and patient advocates.

The foundation primarily serves patients and their families living with mitochondrial diseases, providing essential services ranging from patient support lines to genetic testing resources. UMDF’s long-term vision is to eradicate mitochondrial disease by accelerating therapeutic discoveries and ensuring affected individuals have access to the best possible care and an informed support system.