Mogad / Social.IM is a company.
Key people at Mogad / Social.IM.
Mogad / Social.IM was founded by Yan-David Erlich (Founder & CEO).
Mogad / Social.IM was founded by Yan-David Erlich (Founder & CEO).
Mogad / Social.IM refers primarily to *The MOG Project*, a patient-led nonprofit organization focused on Myelin Oligodendrocyte Glycoprotein Antibody Disease (MOGAD), a rare neuroimmune disorder. It is not an investment firm but a portfolio of advocacy, education, and research support activities centered on this disease.
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The MOG Project builds a comprehensive support and information platform for patients, caregivers, clinicians, and researchers involved with MOGAD. It serves the global MOGAD community by raising awareness, educating stakeholders, advancing research through collaboration and fundraising, and providing emotional and social support networks. The organization addresses the critical problem of limited awareness and misinformation about MOGAD, a rare autoimmune disease that affects the brain, optic nerve, and spinal cord, often leading to vision loss and motor dysfunction. Since its inception, it has grown significantly, expanding its community and influence through social media, podcasts, support groups, and partnerships with medical experts and other nonprofits[1][2][4].
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The MOG Project was formally launched in December 2017 by a small group of patients and caregivers, including Julia, her daughter Kristina Lefelar, and Amy Ednie, who were motivated by the lack of reliable information and support for MOGAD patients. At that time, MOGAD was barely recognized in the medical community, and patients faced feelings of hopelessness due to scarce and inaccurate information. The group initially operated under the umbrella of the SRNA (The Siegel Rare Neuroimmune Association) before becoming an independent nonprofit in early 2020. The community chose the hummingbird as their mascot, symbolizing strength, resilience, and hope, reflecting the spirit of those affected by MOGAD[1][2][4].
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While not a technology company, The MOG Project leverages digital platforms and social media to build a global community and disseminate critical health information. It rides the broader trend of patient empowerment through digital health advocacy and data-driven research collaboration. The timing is crucial as MOGAD diagnosis and treatment are rapidly evolving fields, with new biomarkers and clinical trials emerging. The organization influences the broader rare disease ecosystem by bridging gaps between patients, clinicians, and researchers, accelerating knowledge sharing and improving patient outcomes worldwide[2][6].
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The MOG Project is poised to continue expanding its impact by deepening collaborations with researchers and pharmaceutical companies, enhancing patient education, and supporting clinical trials. Trends such as personalized medicine, biomarker-driven diagnostics, and digital health engagement will shape its future trajectory. As awareness grows, the organization’s influence will likely increase, helping to improve early diagnosis, treatment options, and quality of life for MOGAD patients globally. The MOG Project exemplifies how patient-led advocacy can transform rare disease landscapes through resilience and community solidarity[2][6].
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This overview highlights The MOG Project as a vital, patient-centered organization dedicated to combating the challenges of MOGAD through education, support, and research advocacy.
Key people at Mogad / Social.IM.
